This is Not Medical Advice
The first two test posts to this blog are dated April 12, 2020. That's likely the day I set it up, not long after the pandemic began.
I had some fantasy I would talk about health stuff in a way that would be useful to other people. It's an old fantasy and it never leads to any good, but I keep trying because I'm terribly untalented at bottling things up and not speaking about them.
A few hours ago, someone linked me to a piece about antibiotics. Is that related to me deciding to write here? I have no idea. I've been up all night and I'm just desperately trying to escape my own life in some sense without literally killing myself, which often seems like the only way out of this mess.
A bottleneck in the system. That's how I think of my genetic disorder.
My official diagnosis is Atypical Cystic Fibrosis. That site has a pinned Featured post giving my 2 cents worth about what that means but it is more simply thought of as a bottleneck in the system.
It boils down to this: There is a miscoded protein, the CFTR, which serves as a cell channel that handles traffic into and out of the cells of certain molecules. This miscoded protein forms a bottleneck in the system at the cellular level.
That's the root cause of myriad issues and it's possible to work around them to a significant degree if you understand the bottleneck in the system.
I suppose I probably set this blog up around the time that I learned from a researcher that zinc had something to do with blood issues and Covid-19. I was just beginning to realize I and my sons were likely infected but recovering.
Everyone says Covid-19 is a respiratory infection but my respiratory problems were more under control than usual. Instead, I felt sort of like I had severe anemia.
I felt weirdly like I had no trouble breathing but the oxygen wasn't getting into my blood. Like there was a new bottleneck in the system, one caused by Covid-19, one that had something to do with the functioning of my circulatory system.
I set this blog up to try to write about that and then never did anything with it. It's not going to accomplish any good anyway, no matter how I approach the topic.
I'm not writing today to do any good for the world. I'm not writing this post to try to help other people.
This is not medical advice. This is a rant.
It is a rant about the deficiencies of my defective body. It is a rant about how fact is stranger than fiction combines with The Overton Window to add up to hell is other people.
If you think some former homemaker talking about doing more science in her kitchen than you do in your spiffy lab is some scary Pandora's Box, maybe get a better hobby than cyberstalking me and dreaming up bullshit reasons to see bad things in me. In a world actively brewing antibiotic resistant infections and global pandemics...
I had some fantasy I would talk about health stuff in a way that would be useful to other people. It's an old fantasy and it never leads to any good, but I keep trying because I'm terribly untalented at bottling things up and not speaking about them.
A few hours ago, someone linked me to a piece about antibiotics. Is that related to me deciding to write here? I have no idea. I've been up all night and I'm just desperately trying to escape my own life in some sense without literally killing myself, which often seems like the only way out of this mess.
A bottleneck in the system. That's how I think of my genetic disorder.
My official diagnosis is Atypical Cystic Fibrosis. That site has a pinned Featured post giving my 2 cents worth about what that means but it is more simply thought of as a bottleneck in the system.
It boils down to this: There is a miscoded protein, the CFTR, which serves as a cell channel that handles traffic into and out of the cells of certain molecules. This miscoded protein forms a bottleneck in the system at the cellular level.
That's the root cause of myriad issues and it's possible to work around them to a significant degree if you understand the bottleneck in the system.
I suppose I probably set this blog up around the time that I learned from a researcher that zinc had something to do with blood issues and Covid-19. I was just beginning to realize I and my sons were likely infected but recovering.
Everyone says Covid-19 is a respiratory infection but my respiratory problems were more under control than usual. Instead, I felt sort of like I had severe anemia.
I felt weirdly like I had no trouble breathing but the oxygen wasn't getting into my blood. Like there was a new bottleneck in the system, one caused by Covid-19, one that had something to do with the functioning of my circulatory system.
I set this blog up to try to write about that and then never did anything with it. It's not going to accomplish any good anyway, no matter how I approach the topic.
I'm not writing today to do any good for the world. I'm not writing this post to try to help other people.
This is not medical advice. This is a rant.
It is a rant about the deficiencies of my defective body. It is a rant about how fact is stranger than fiction combines with The Overton Window to add up to hell is other people.
No, I am not claiming to have found a cure.No, I'm not a medical doctor. Fat lot of good being a medical doctor did Semmelweis.
My genetic defect remains.
If you think some former homemaker talking about doing more science in her kitchen than you do in your spiffy lab is some scary Pandora's Box, maybe get a better hobby than cyberstalking me and dreaming up bullshit reasons to see bad things in me. In a world actively brewing antibiotic resistant infections and global pandemics...
It ain't me you gotta worry about.72